Today was a better day than yesterday. Logan was in a much calmer mood today and we found out the the DiGeorge Syndrome is not as bad as the internet information makes it sound.
We talked to the genetic dr today and she explained that the stuff you read on the internet about the DiGeorge Syndrone can be scary and over exaggerated. That was confirmed by someone else who has a 2 year old girl with that syndrome. The stuff they describe on the internet are all possible symptoms but rarely occur in their severe state. Basically the most common sympton is the heart problems, which hopefully have been addressed. The next most common symptom is a missing thymus (a covering around the heart) which Logan does not have. This part of the body is one of the parts that produces immune fighting T-cells, but it is not the only part of the body that does that so his immune system may need some extra boosting for a few years due to this not being there. They took some blood from him this morning to test for the T-cells and that will determine how delicate his immune system. The other thing mentioned is the possibility of learning disabilites, but that will only show over time, however it is not a definite symptom just a possibility. Another thing mentioned was more than average ear infections. There was some stuff on the internet about facial stuff, which he does not seem to have and cleft pallet, which they checked for and did not seem to be occuring.
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