or so to speak. For those of you who don’t know, we’ve had some trouble getting Logan to take his bottles over the last few weeks. Today we had an appointment for a swallow study. They take some barium powder, add it to his formula and feed it to him while a live x-ray is being done. This shows his swallowing and where the formula is going. Today’s results showed he is aspirating while drinking. Meaning some fluid is going down the wrong pipe which isn’t good. He now is not allowed to have any feedings by bottle. This is a big disappointment to me but we do still have the feeding tube which is a means of feeding him and allowing him to grow. The therapist that conducted the study said this is common in kids with DiGeorge Syndrome. We are however allowed to feed him some small portions of baby food such as cereal. During the test he seemed to do ok with it. Seems when he has just one swallow to focus on and then can follow it with some “dry” swallows he does ok rather than a continual flow of liquid to keep up with. The plan is to follow up with another swallow study in 3 months and see if there’s an improvement in his swallowing. When we asked the therapist why at one point he seemed to take bottles fine and now doesn’t, she said that an infant’s mouth and esophagus structure goes through a huge growth and change during the first year of life and around 3 months or so of age seems to be a period of change.

Today Logan had his casts removed. Below are the pics of his shoes & brace that he needs to wear for the next 3 months.

Video – for those of you that like to see Logan in action.

…even though nobody can understand him.

Check out this video – He seems to of found a friend in the character on my shirt. Logan shares some of his thoughts on the world with the guy.